Voices & StoriesACC's Emergency Preparedness and Disaster Response services bring peace and security
By Anonymous • Posted on February 3, 2021
How has the Disability Disaster Access and Resources Program changed your life?
Ever since the Thomas Fire this has been in the back of my mind being worried about the electricity going off and all of a sudden PG&E referred me to you and there was an overwhelming amount of peace. It gives you a deep peace to know you’re not subject to the whims of the weather. You can never tell about the unknown factors. You can watch the weather all you want but the reality is you need to be prepared.
How do you feel about how ACC has helped you prepare for disasters and emergencies? How did you feel before?
It's like a miracle happened to me. That's the way I feel. In the beginning I couldn't believe it. I didn't believe it for the first week or so. It's wonderful, I don't know how to describe it, it's beyond words at times. Before planning with ACC there was nothing and I explored everything to find assistance. Unless I had $5,000 to buy a battery there was nothing for me and I felt frustration that the winds could make them turn the power off. It's nice to be able to do something about it. Before planning it made me feel powerless. It gave me power in this situation to get the planning.
What is different now that you have the backup battery and disaster plan?
It's peace of mind I guess. It's being proactive instead of waiting for the situation to happen and seeing what help you can find. This program is safety and gives you a nice warm fuzzy feeling.
"ACC isn't like a government agency it's like people helping people. It's real help by real people."
-Michele, Consumer of Lauren Utterback- Independent Living Advocate
My name is Ann and I am writing to tell you how deeply grateful I am to the Access Central Coast, Inc for first their loan of a Samsung Chromebook and now the gift of the same. Their generous loan and trust in me literally saved my life. It allowed me to reach out and stay connected with people and my long time Recovery 12 step meetings during the horrible loneliness and isolation of self quarantine for over a year. I am at high risk as a 72 and a half year old Lesbian with chronic PTSD Survivor of multiple sexual assaults and a hate crime and still suffering from life long ramifications of the abuse along with blocked airway disease from being evacuated in the Woolsey Malibu fires in 2018. Having this Chromebook has empowered me to apply for emergency covid grants of food, help with dental bills, gas and drs bills. It also helped me to keep learning by attending zoom meetings in film theatre art and television. The ACC puts their efforts where their organization’s vision and goals are...helping persons with disabilities. They helped me stay alive and gave me hope.
God Bless Jaydon Gaines and her Associates.
I will forever be grateful for their kindness, support and generosity.
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[1] => Array
(
[id] => 8
[date] => 2022-10-19
[status] => Active
[new] =>
[title] => Can we make independence society's default setting?
[author] => Jacob Lesner-Buxton
[article] =>
It seems like every time I fly, I always run into one or two airport staff who are surprised I am traveling by myself. “Are you traveling with anyone?” is a question I get from many TSA agents. Once, a flight attendant asked me if I needed her to wait for my parents to pick me up. She was speechless when I told her I had lived alone for many years.
Due to heightened airport security, I am careful what I say when dealing with the airport staff. Sometimes I want to come back with a snappy retort like, yes, I am traveling with Leroy Moore. Leroy has done groundbreaking advocacy at the intersection of disability rights, racial justice, and hip hop. I would love for other people with disabilities to drop his name to TSA agents, too. That might just get them curious enough to look up his name on their next lunch break.
But instead of hoping the staff gets my sarcasm, there may be other ways to encourage staff at airports (and in other industries) to see those with disabilities as capable of being independent through education and training.
I often encounter situations where I am surprised that people don’t grasp that I make my own decisions. For instance, a government agency that assists me with living independently never fails to offer to invite my parents to meetings about my services. That agency also asks to speak to my parents when they wish to know the quality of their services.
After complaining for two years about the program and requesting to talk to my parents, I got a call from the person running the survey. He explained that several parents got mad at the researchers for talking to their offspring without their knowledge, so that is why they decided to ask for them.
There’s a simple solution to the problem of asking to meet with a 39-year-old's parent that will appease both parties. Staff could be trained only to bring up the client's parents if they are A. a minor or B. under conservatorship.
Although it might sound like this issue is simply a pet peeve, I continue to feel the consequences of living in a society where some policymakers don’t view people with disabilities as independent. Recently California started a program that gives certain people with disabilities a budget to hire individuals to assist them with activities like daily living or teaching them yoga or how to use the computer. It used to be providers had to go through a lengthy approval process for the state to pay food their services.
While this program sounds great, California requires a person with a disability to pay $140 a month per service to a company to cut checks to the people assisting me. The money comes from the budget given to me by the state.
While this requirement might help some, others should have the option to forgo working with the company and be able to issue checks directly. I would rather sit through a class to learn how to do payroll instead of paying $300 for a company to do HR for two or three employees.
Ironically, it's easy to make policymakers and others understand how independent I am. I can count on two fingers the number of people who didn’t acknowledge my independence when I asked them to do so. Making someone understand that I am capable is some of the easiest work I have ever done as an advocate.
Although I understand that being a cis-gendered white man plays a role in how people perceive me, if more people with disabilities are demanded to be seen as capable of making decisions, society may see independence as the norm rather than the expectation.
Each time we tell a server that we can order for ourselves or a doctor that we can make our own decision, we contribute to making independence the main characteristic people associate with those with disabilities.
Photo of Jacob Lesner-Buxton talking to his God Uncle, former State
Assemblyman and LBGTQ rights activist Tom Ammiano, in his office
in Sacramento.
)
[2] => Array
(
[id] => 16
[date] => 2021-02-03
[status] => Active
[new] =>
[title] => Consumer shares how receiving a Chromebook has changed her life
[author] => Anonymous
[article] =>
The COVID-19 Pandemic has shifted most services, appointments, and social gatherings to take place virtually, and having access to a computer has become more important than ever. In the above video, one of our consumers talks about how essential having access to a computer is for her and how receiving a Chromebook through ACC has benefitted her.