By Nathan Lungu • Posted on February 3, 2021
“Moving into my own place for the first time in two years I may have forgotten the importance of being ready for any possible disaster that may arise and unfortunately a little unprepared. The teachings of safety and preparedness from my own parents went over my head as I was more focused on moving into my place than the dangers that can always come up unexpectedly. I was thankful to have ACC with a team of well-prepared and knowledgeable staff to help cover the things I had forgotten. Lauren Utterback went out of her way to bring me extra face masks and gloves during this uncertain time amidst the COVID-19 pandemic. With her help I was able to leave my home with a feeling of being better prepared to stay safe and healthy. Also, her help with putting together a list of emergency contacts and doctor information is now easily readable and hangs on my fridge for anyone that may need it in a hurry. Her suggestions for putting together an ‘emergency preparedness kit’ and the items to include helped me tremendously through a process I started to feel overwhelmed by. I now know I have a team I can go to for anything relating to preparation and safety among a list of other services they provide.
"Thank you, Lauren, and thank you ACC”
-Nathan Lungu, Consumer of Lauren Utterback, Independent Living Advocate
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[id] => 12
[date] => 2022-10-19
[status] => Active
[new] =>
[title] => Access in the News!
[author] => Brittany Pudnos
[article] => Did you know that Close to 30 million adults in the U.S. could benefit from hearing aid use? And that the average price of an adult hearing aid is about $2,000-$3,000. It can range from $1,000 up to more than $4,000 for each device, depending on the level of technology. The good news is that the push for easier access to assistive technology had a big win recently! On August 16th, The U.S. FDA issued a final rule to improve access to hearing aids. Certain hearing aids for those who are 18 and older will now be available with no doctor's visit or fitting necessary. These new over-the-counter (OTC) hearing aids enable consumers with perceived mild to moderate hearing impairment to purchase hearing aids directly from stores or online retailers without the need for a medical exam, prescription, or fitting adjustment by an audiologist.
“Reducing healthcare costs in America has been a priority of mine since Day One, and this rule is expected to help us achieve quality, affordable healthcare access for millions of Americans in need,” said Health and Human Services Secretary Xavier Becerra. “Today’s action by the FDA represents a significant milestone in making hearing aids more cost-effective and accessible.”
What a great way to take down barriers and make healthcare accessible for all!
https://www.fda.gov/news-events/press-announcements/fda-finalizes-historic-rule-enabling-access-over-counter-hearing-aids-millions-americans
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[1] => Array
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[id] => 7
[date] => 2022-10-19
[status] => Active
[new] =>
[title] => Opening a New Chapter at ACC
[author] => Emily Bridges
[article] => These past couple of years at the Access Central Coast have been a journey of community networking and consumer services. Some readers may know I started working at ACC in July 2020 as a Community Living Advocate (CLA) in Santa Barbara, working with people in Santa Barbara County who have disabilities of all ages to achieve their independence goals. Before that, I graduated with a Master of Public Health and Disability Studies Certificate, moved to California from the Southeast United States to start a newly married life as a California citizen, and spent several months Airbnb hopping. All the while, my husband and I were navigating the beginning stages of Covid and isolation. Talk about an eventful set of months!
After a few months as a CLA, I moved on to working as the Focused Population Case Manager in ACC’s Ventura office in November 2020. Through this role, I assisted people with or at risk of a dementia diagnosis and their live-in caregivers (i.e., spouses and family members) with case management and education about the various types of dementia. One of the key services was caregiver respite through a partnership with Channel Islands Social Services. However, I also have assisted with connecting to other services at ACC and within their communities. I would also help raise dementia awareness and acceptance throughout Ventura County.
While I enjoyed the roles at ACC that I’ve had for the last couple of years, I am thrilled to start as the Public Health Advocate in October (next month)! This will merge my passion for health equity and access and my educational background into an exciting opportunity. I will help build disability representation on a State and Local level when responding to current and future public health issues. More details will come throughout my time in this position, and I would be happy to hear input from folks. All that to say, I look forward to what this next phase of the journey will hold!
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[2] => Array
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[id] => 6
[date] => 2022-10-12
[status] => Active
[new] =>
[title] => What Disability Pride Means to Me
[author] => Emily Bridges
[article] => 
With the passing of the Americans with Disabilities Act (ADA) in July 1990, the month of July is Disability Pride Month. It's hard to imagine sometimes, but that was 32 years ago! Each ADA Anniversary allows self-advocates to reflect on how their conditions bring them strength. It also allows for calls to action in improving accessibility across the country and the world.
The first word I thought of while writing this piece is "intergenerational." This word means relating to people in different age categories. Whether you are Gen Z or a Baby Boomer, everyone will probably experience disabilities in one way or another. The chance of getting a disability increases as we age. So, people in each generation should learn lessons from those before and after theirs.
An event with valuable insights was when Judy Heumann spoke at the University of Georgia (UGA) a few years ago at the 2019 Georgia Disability History Symposium. The discussion happened while I attended UGA. As someone who lives in both pre-and post-ADA worlds, Judy highlighted the benefits it brought when signed while also recognizing the struggles that still exist long after. This is particularly the case for people with disabilities in other minority groups (race/ethnicity, LGBTQ+, etc.). One final thing that Judy discussed is switching words like "special needs" or "different abilities" in favor of using "disability" to help erase the stigma of having a condition. It's a natural part of living that should be embraced, not feared.
Judy Heumann may not remember me from everyone she has met at all her public speaking events, but I certainly will remember the lessons I've learned from her and so many powerhouses that have come before. I will also work to pay it forward to future generations of self-advocates by both sharing views and learning about new perspectives. We all travel this road called life, and it's wonderful sharing it with others. Community connectedness is a huge part of Disability Pride. It is something to celebrate each July and always!
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