Voices & Stories Opening a New Chapter at ACC


By Emily Bridges • Posted on October 19, 2022

These past couple of years at the Access Central Coast have been a journey of community networking and consumer services. Some readers may know I started working at ACC in July 2020 as a Community Living Advocate (CLA) in Santa Barbara, working with people in Santa Barbara County who have disabilities of all ages to achieve their independence goals. Before that, I graduated with a Master of Public Health and Disability Studies Certificate, moved to California from the Southeast United States to start a newly married life as a California citizen, and spent several months Airbnb hopping. All the while, my husband and I were navigating the beginning stages of Covid and isolation. Talk about an eventful set of months!
 
After a few months as a CLA, I moved on to working as the Focused Population Case Manager in ACC’s Ventura office in November 2020. Through this role, I assisted people with or at risk of a dementia diagnosis and their live-in caregivers (i.e., spouses and family members) with case management and education about the various types of dementia. One of the key services was caregiver respite through a partnership with Channel Islands Social Services. However, I also have assisted with connecting to other services at ACC and within their communities. I would also help raise dementia awareness and acceptance throughout Ventura County. 
 
While I enjoyed the roles at ACC that I’ve had for the last couple of years, I am thrilled to start as the Public Health Advocate in October (next month)! This will merge my passion for health equity and access and my educational background into an exciting opportunity. I will help build disability representation on a State and Local level when responding to current and future public health issues. More details will come throughout my time in this position, and I would be happy to hear input from folks. All that to say, I look forward to what this next phase of the journey will hold!

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            [title] => Consumer shares how receiving a Chromebook has changed her life
            [author] => Anonymous
            [article] => 

The COVID-19 Pandemic has shifted most services, appointments, and social gatherings to take place virtually, and having access to a computer has become more important than ever. In the above video, one of our consumers talks about how essential having access to a computer is for her and how receiving a Chromebook through ACC has benefitted her. 

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For those who don’t know, an ally means someone who takes particular action to support a person or a group or both. For instance, if an able-bodied person complains about a building inaccessible to those with disabilities, a person might be considered an ally. No two people with disabilities agree on all the traits that make someone a good ally, but most of us agree that listening to us is an essential part.
 
Unfortunately, some people with good intentions forget to listen to our needs before trying to help us. This often results in awkward and unsafe situations. Recently, my fiance, who is legally blind, asked a movie theater employee, “where can I get the popcorn?” The employee answered by grabbing her cane and pulling her toward the concession stand, him on one end of the cane and her on the other. The experience led her to feel disoriented, and frustrated.
 
Checking in with a person before offering help is important. Asking how you can best be of help is also imperative to assure that the help is actually helpful. 
 
Remember, if a person doesn’t require assistance at the moment, they might appreciate your help at a later date. While walking with my friend one Halloween night, I tripped and fell. When I asked my friend why he didn’t offer to guide me through the darkness, he replied, “you said that you didn’t need assistance six months ago when I offered.”
 
Besides knowing that a person's need for assistance may vary from day to day. I suggest not offering assistance out of guilt. I have been assisted by people who are impatient with the task we are doing. What they saw as helping me was really them helping themselves save time. For someone already a bit ashamed about asking for so much assistance, having someone complaining about the errands we are running makes me feel guilty for asking in the first place.
 
However, I do believe it’s appropriate to be honest with the person asking for help before the task. Asking the person for things like gas money for a ride or telling them about your bad shoulder that prevents you from assisting them with moving is extremely helpful to me. Like I said before, most people want to feel like they are not being a burden on others. Honest communication is essential to creating a helping relationship in which one person doesn’t feel like a burden and the other doesn’t feel like a savior.
 

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How has the Disability Disaster Access and Resources Program changed your life?  

Ever since the Thomas Fire this has been in the back of my mind being worried about the electricity going off and all of a sudden PG&E referred me to you and there was an overwhelming amount of peace. It gives you a deep peace to know you’re not subject to the whims of the weather. You can never tell about the unknown factors. You can watch the weather all you want but the reality is you need to be prepared. 

How do you feel about how ACC has helped you prepare for disasters and emergencies? How did you feel before?   

It's like a miracle happened to me. That's the way I feel. In the beginning I couldn't believe it. I didn't believe it for the first week or so. It's wonderful, I don't know how to describe it, it's beyond words at times. Before planning with ACC there was nothing and I explored everything to find assistance. Unless I had $5,000 to buy a battery there was nothing for me and I felt frustration that the winds could make them turn the power off. It's nice to be able to do something about it. Before planning it made me feel powerless. It gave me power in this situation to get the planning.  

What is different now that you have the backup battery and disaster plan?

It's peace of mind I guess. It's being proactive instead of waiting for the situation to happen and seeing what help you can find. This program is safety and gives you a nice warm fuzzy feeling.

"ACC isn't like a government agency it's like people helping people. It's real help by real people."

-Michele, Consumer of Lauren Utterback- Independent Living Advocate

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